- 1. Plan bathroom breaks at least every hour whether they have the urge to go or not.
The flow of a person with PWS is different as well and they should be
encouraged to wait several seconds before stepping away from the toilet.
It may take up to 30 seconds for the flow of urine to start.
Encourage drinking during the day and less so in the evening. Overnight
incontinence is extremely common and restricting fluids after dinner
will help with this.
- 4. Avoid shaming of any kind. This will only foster sneaking behavior around incontinence; Hiding wet underclothes and pants, unwanted behaviors due to embarrassment or guilt etc...
Don't forget that people with PWS are more prone to hyper hydration than a non PWS person. Hyper hydration can be as or more dangerous than dehydration. Always check with your child's doctor as to how much fluid your child should drink each day.
Manager of PWS Services