What an amazing week for conferences! Over the weekend I had the honor of speaking at the Ontario PWS Association in Toronto. I met new families and had the pleasure of seeing old friends. The conference presenters were made up of parents, caregivers, physicians, and attorneys all speaking to what matters most- helping our kids succeed.
This week I am in Virginia at the National Organization for Rare Diseases conference celebrating 30 years of advocacy and renewed hope
offered through the Orphan Drug Act of 1983. What incredible people,
dedicating their lives to improving medical care
and research for the hundreds of rare diseases that many health
professionals ignore. Today is day one and I am looking forward to
learning and spreading the word about PWS.
Manager PWS Services