We
often hear people with PWS described as being the “mayor” of his or her
community because the ability to make acquaintances comes quite
naturally. Parents of PWS children often describe
their kids as someone that everyone in the town knows and likes; but
the challenge comes when it is time to move from acquaintances to being
and having a true friend. The ability to have meaningful relationships
is essential for anyone to have an abundant,
quality life, including those with PWS.
There
are a number of things that you can do (and not do) to help your child
along in obtaining meaningful and fulfilling relationships:
1. Play fair. It is tempting to
let your child win at games because he or she has so many challenges.
Why not let them have some success when you have control over it? While
it is true that success breeds confidence, always
winning also makes for a child with unrealistic expectations.
2. Hold your child accountable.
Poor behavior is poor behavior, regardless of the diagnosis. After a
behavioral incident, give your child some time to calm down and regroup
and then go over the incident. If you allow your
child to say or believe that any acts of violence, tantrums, or verbal
outbursts are because of PWS, you are doing a disservice to your child.
Children will often meet the expectations put on them and a child with a
developmental disability is no different
in that regard. There will likely be slips along the road, but continue
to make your expectations clear.
3. Practice saying nice things about people. Get your child in the habit of complimenting others, especially peers.
4. Focus on the positive. Finding
one good thing about someone you don’t like teaches children that
people are not all bad. There may be something about a person that they
don’t like but asking them to talk about something
good about a person that they don’t get along with is an important life
lesson.
5. Mistakes are okay and human. Never give up.
6. Allow for risk taking. We grow and learn as a result of our successes and our failures.
7. Keep trying.
8. Have fun!
9. Avoid blaming other people in
front of your child. You may have legitimate issues with
teachers, other
parents or providers but being critical of them in front of your child
teaches them that it is okay to be disrespectful.
10. Embrace every success and learn from every failure.
Patrice Carroll
Manager of PWS Services

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